Trump administration strips C.D.C. Corona data control

Trump administration strips C.D.C. Corona data control
The Trump administration has ordered hospitals to bypass CDCs and send all Covid-19 patients information to a central database in Washington from Wednesday. The move has worried health experts, who fear the data will be politicized or withheld from the public.

The new instructions were recently published in an unnoticed document on the Ministry of Health and Human Services website. From now on, the partition - not the CDC. - It will collect daily reports on the patients treated by each hospital, the number of beds available, ventilators, and other vital information to track the epidemic.

Officials say the change will simplify data collection and help the White House coronavirus task force allocate rare supplies such as personal protective equipment and remdesivir, the first drug proven to be effective against the virus. But the health and human services database that will receive new information is not open to the public, which may affect the work of dozens of researchers, designers, and health officials who rely on C.D.C. Data to make critical expectations and decisions.

“Historically, CDC has been the place where public health data was sent, and this raises questions about not only researchers reaching but journalists and reaching the public to try to better understand what is happening with the outbreak of the disease,” said Jane Keats, Director of Global Health And HIV policy with the non-partisan Kaiser Family Foundation.

How will the data be protected? “She asked.” Will there be transparency, there will be access, and what is the role of the Civil Development Commission? In understanding the data? "

The news of the change was a shock at the coordination center, according to officials who spoke on condition of anonymity because they were not authorized to discuss the matter. Michael R. Caputo, a spokesman for health and human services, described the CDC system as insufficient and said the two systems would be linked. CDC. He said will continue to publish the data to the public.

“Today, CDC said Mr. Kabuto: There is still at least a week reporting the hospital data.” America requests it in real time. A new, faster, and complete data system is what our nation needs to defeat the coronavirus, and the CDC Center, an operating division of HHS, will participate in this simplified government response. They simply no longer control it. "

But the instructions for hospitals in the department’s guidelines are clear and prominently stated: “As of July 15, 2020, hospitals do not have to report Covid-19 information in this document to the website of the National Healthcare Safety Network,” the CDC system for data collection from more than 25,000 medical centers in All over the country.

Public health experts have long expressed their concerns that the Trump administration is politicizing science and undermining health experts, especially the Civil Development Committee; Four of the agency's former managers, across both the Republican and Democratic administrations, said in an opinion piece published Tuesday in The Washington Post. The shift in data collection reinforced those concerns.

"The centrality of controlling all data under the umbrella of an authentic political apparatus is dangerous and generates mistrust," said Dr. Nicole Lowry, who served as assistant secretary of preparedness and response under former President Barack Obama. "It seems to cut off the ability of agencies like CDC to do their basic work."

This shift grew from a tense conference call several weeks ago between hospital directors and Dr. Deborah Perks, White House coronavirus response coordinator. After Dr. Birks said that hospitals had not reported enough data, a working group of government officials and hospitals convened the new plan, according to Dr. Janis Orlovsky, senior health care official at the American Medical College Association, who participated in the group's meetings.

And while she understood the concerns of Dr. Lowry, Dr. Orlovsky said the administration pledged in an "oral discussion" to release the data - or at least allow hospitals to access it.

We are comfortable with that as long as they continue to work with us, and as long as they continue to publicly publish information, and as long as we are able to continue to advise them and consider the data. ”Switch is an“ honest effort to simplify and improve data collection. ”

The change reveals massive gaps in the government's ability to collect and manage health data - an outdated system at best, experts say. CDC. Coronavirus data was collected through the National Healthcare Safety Network, which was expanded at the beginning of the epidemic to track hospital capacity and patient information for Covid-19.

In its new directive, Health and Human Services said that from now on, hospitals must report detailed information on a daily basis directly to the new central system, which is run by TeleTracking, a health data company headquartered in Pittsburgh. However, if hospitals are already reporting this information to their states, they can continue to do so if they receive a written statement saying that the state will deal with the reporting.

Senator Patti Murray of Washington, the top Democrat on the Senate Health Committee, raised questions about the TeleTracking contract, calling it "a multi-billion dollar non-competitive contract" for a "duplicate health data system".

Both the CDC network and the TeleTracking system created by Health and Human Services rely on so-called payment data, which means hospital staff must enter data manually, rather than the government exploiting an electronic system to obtain information.

Dr. said Dan Hanfling, a medical expert on disaster preparedness and vice president of In-Q-Tel, a non-profit strategic investment company focused on national security: "Everything must be done away with and start over again." "It is laughable that this administration has not been able to find the right place to bring the 21st century technologies of data management into combat."

Dr. Hanfling and others agree that information needs to be centralized, but they disagree on how this will happen. Called dr. Hanfling to create a "National Data Coordination Center" used "to predict, identify, detect, track and report emerging diseases."

Rep. Donna Shalala, from Florida, who served as Secretary of Health under former President Bill Clinton, said the Civil Development Commission. It was the appropriate agency to collect health data. She said that if there are defects in the CDC systems, then they must be fixed.

Only CDC said Ms. Shalala, she has experience collecting data. "I think any move to transfer responsibility for people who have experience is politicizing."

Hospitals say the previous reporting requirements were cumbersome, in part because they changed frequently.

"It has been an overwhelming and troublesome administrative hassle to constantly head over reporting while hospitals are on the front lines during the epidemic," wrote Carrie Williams, spokeswoman for the Texas Hospitals Association, in an email.

Dr. Bella N said. Hota, chief hospital analyst, at Rush University Medical Center in Chicago With the outbreak, the hospital had four full-time employees reporting coronavirus data to four different agencies. Rush has collected over 100 different actions, some of which set how much money you'll get under different federal programs.

But while Dr. Huta said he supported streamlining the process and involving government and local agencies in reporting, he was also concerned that months into the pandemic, the United States still had no fixed system to collect the kind of information it needed to transport patients seamlessly from one full hospital to one with Beds available.

CDC is the right agency to be at the forefront of data collection.

CDC. She was criticized for collecting data, however. In May, the agency recognized that in tracking the spread of the virus, tests that revealed active infection were combined with those that revealed recovery from Covid-19. This system sabotaged the image of the epidemic but raised the percentage of Americans who were tested while President Trump was boasting about the number of tests being conducted by the United States.

Similar complaints about coronavirus data have appeared throughout the country.

In Florida, a former Health Ministry director of data accused one of her bosses of directing "manipulation" of data used in the state's plan to raise orders to stay home this spring. Ms. Shalala said that the mayor of Miami-Dade "was so concerned about the state's data that he even had the hospitals to report it directly to me."

The state of Arizona ended its partnership with the University Fashion Modeling team, whose expectations showed an increase in the number of cases, prompting a response from Will Hempel, Executive Director of the Arizona Public Health Association and former director of the state's Health Services Administration.

"Trust, accountability and transparency - the three go together," said Mr. Hempel. On the new system of the federal government, he said: "It is better that they maintain transparency, otherwise people will think it was a hidden motive."

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